Archive for February, 2008
Posted on February 25, 2008. Filed under: Caregiver Support, Living in Chronicity, Nutrition, Social Issues, caregiver | Tags: feeding pump, moms, signing time, special needs, staring, TPN |
It was near the end of last summer when I took my girls to see a live Signing Time show at a local school theater. Having been long time fans of Rachel and the amazing work she does for the hearing impaired, I made sure we got there early and got a front row seat… [...]
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Posted on February 15, 2008. Filed under: Fundraising Ideas in General, Local Fundraisers, The Science, cystic fibrosis | Tags: clinical trial, cystic fibrosis, cystic fibrosis foundation, denufosol, Great Strides, ptc124 |
Denufosol… the next miracle drug?
Let’s hope so!
There’s been a lot of buzz about the promise of this exciting drug to enter the realm of cystic fibrosis treatments. As it enters its second Phase III trial, the excitement is palpable. Will this change the future of the cystic fibrosis in our youngest population, potentially [...]
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Posted on February 5, 2008. Filed under: Living in Chronicity, Social Issues, The Science, cystic fibrosis | Tags: cystic fibrosis, Living in Chronicity, smoking |
Secondhand smoke is deadly. Dangerous. Downright dirty. So what’s the news? Check out this JAMA abstract to see the facts of the effects of secondhand smoke on those with CF. Another article here.
For those living with cystic fibrosis (or other lung diseases, for that matter), secondhand smoke is, essentially, the devil. [...]
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