Must be doing something right…

These are exciting times indeed!

The CFF wins again… sort of. It’s no small feat for the Cystic Fibrosis Foundation’s care center network to be recognized by The National Institutes of Health as a model for the delivery of care for those with a chronic disease. Even more surprising for some was the bold move to make public the data on each of their care centers. Read the highlights here.

I directly attribute the great achievements and recognition of the CFF’s efforts in providing quality care while using innovative means to search for a cure to the extraordinary vision of the President and CEO of the Cystic Fibrosis Foundation ~ Robert J. Beall, Ph.D. I’ve had the honor of meeting Dr. Beall on a few different occasions and I have to say I’m massively impressed with his dedication to finding a cure for my daughter. I realize he’s the frontman for a much larger team of players, but it means something more when you’ve actually seen his passion up close and personal. Which is why, when I get the form letter email from the Foundation about what Dr. Beall has been up to, I take note of what he has to say. I hope you’ll take this plea seriously, too. Today’s form letter read something like this:

Dear Friend,

Robert J. Beall, Ph.D., president and CEO of the Cystic Fibrosis Foundation, testified today before the Small Business Committee of the U.S. House of Representatives. He urged the committee to support research of rare diseases, such as cystic fibrosis.

Click here to view Dr. Beall’s testimony.

Specifically, Dr. Beall asked Congress to reauthorize the Small Business Innovation Research (SBIR) program, which provides grants to small biotech companies. He also urged Congress to dedicate a portion of these grants to companies interested in building drug discovery and development programs for CF and other rare diseases. Congress must reauthorize the SBIR program before it expires in September.

You too can make a difference—and inspire others to take action—by building a powerful CF Advocacy Task Force. Here’s how:

1. Register to be an Advocate.
   You will be notified when your involvement can make a critical difference.
2. Ask 5 friends or family members to sign up.
   As Advocates, they will help ensure that our agenda makes an impact in Washington, D.C. There is power in numbers.

Thank you for supporting our important mission. Together, we are adding tomorrows every day to the lives of those with CF. Sincerely,

Cystic Fibrosis Foundation
6931 Arlington Road
Bethesda, MD 20814
(800) FIGHT CF
E-mail: publicpolicy@cff.org
Web: www.cff.org/GetInvolved/Advocate

P.S. Remember—register to be an Advocate and ask others to sign up!